4/5/12

The Big Run: 10 Marathons in 10 days


Charlotte Okines and Becky Reid are planning a sponsor run for the Progeria Family Circle. The route goes from Yorkshire to Kent. They will run 10 marathons in 10 days! Starting on April 5th, they hope to finish their 438 km long run on 14th of April 2012.

Charlotte always had a tough time dealing with her sisters condition, progeria. For a long time, she tried to block out what was happening. It was very difficult for her to feel so helpless. But in 2010 she helped to organise and host the UK’s first Progeria reunion, which was repeated again in 2011. This was a life-changing experience for her.

 ‘I couldn’t believe the strength, love and support between all the families, it was incredible. It made me feel strong and safe. I decided that I wanted to start raising money to make sure the reunions continue to happen as they have such a positive impact on everyone involved’. 

Charlotte and her friend Becky will start in Yorkshire, because Harry – another Progeria sufferer and close friend of Charlotte’s sister Hayley – lives there. They will then aim for Kent to meet Hayley. For more information, or to support this sponsorrun, please click HERE..

You can follow Charlotte and Becky's sponsor run on FACEBOOK

4/3/12

secondary school project on progeria


IES Selgas is a Secondary School in Cudillero, Spain. On the 6th of March, Dr. Carlos López-Otín, one of the most important current Spanish scientists, gave a lecture about his work for the students. The title: 'the adventure of the biochemistry of life'. After the lecture, the students asked him many questions about his research. You can read their interview here.
As a result of this project, a group of students decided to translate the information on this blog in Spanish. We will publish it. They are working on it right now! It is a big challenge for them, but this contribution helps raising awareness for progeria in Spain. Hats off to this initiative!