Hayley's Story

There was no sign of the nightmare to come when Hayley was born in 1997. She had fine blonde hair, blue eyes and her parents were besotted with her. At 10 months she walked for the first time. The only concern was she was so petite and didn’t appear to be growing: at 13 months, Hayley still wore clothes for a three-month-old. Her parents took her to a specialist. Six months later a biopsy revealed her skin had an alarming lack of elasticity. In September 1999 the diagnose progeria was confirmed.

Her parents faced a difficult time, but decided that they would make her life special and pack it with wonderful memories…

Read the story of Hayley Okines Life with Progeria in old before my time.